Conquering Neuroblastoma

“Faith in something greater than ourselves enables us to do what we have said we'll do, to press forward when we are tired or hurt or afraid, to keep going when the challenge seems overwhelming and the course is entirely uncertain.”
President Gordon B. Hinckley

Monday, November 26, 2007

November 20, 2007 Update

Ok, here goes... Lukas had a bone scan today and a CT on his organs. We met our new head Oncologist, Dr. Grainger. She is one of the Neuroblastoma specialists here. She is an amazing lady, and I can tell that she is very good at what she does. She said that the bone scan showed several spots or leisions on the bones in his arms and his face. So this cancer has metastasized. Everything so far points to Metastatic Neuroblastoma. Tomorrow will be a very tough day for Lukas. He is going into the OR tomorrow at 8:30am and will have 3 invasive procedures. The ENT doc (ear, nose and throat) will go in and do a biopsy of the tumor in Lukas' head. He plans on going in through his mouth. The tumor does have a lot of veins feeding into it, so that will be something they monitor closely.

There are two possible scenarios that happen now.
1. If they can't get the biopsy of the head tumor, they will go ahead and completely remove the Adrenal gland and do a biopsy of that.
2. They are able to do a biopsy of the head tumor. They leave the Adrenal gland alone if so.
The surgeon and oncologist will also be in the operating room just waiting to hear what the biopsy says. Then we will proceed according to that answer.

The surgeons will then put in a port and do a bilateral bone marrow aspiration.

That's all we know for now.

We ask that you please hold off on visiting tomorrow and Friday. If you want to visit please do it Thursday. We'll need the distraction then since we won't have anything scheduled Thursday.

AND no more food please!! :) I told Kurt, we are supposed to be stressed and LOSE weight!

Love you all and appreciate the prayers and calls more than you will ever know and more than we can ever express.

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