Surgery went well! The ENT doc wasn't able to get to the tumor in Lukas head so they went ahead and took out the adrenal gland. The surgeon was very happy with how easy it was to get the tumor and gland out. The tumor was completely encased and he only had to move the liver out of the way a little to get to it. They did a preliminary biopsy of it and came back with a 99.9% surety that he does have Neuroblastoma. They also did the bilateral bone marrow aspiration and put in a port. Lukas was done with surgery around 11:10 am and went to post op. There he had a chest x-ray and echo cardiogram. Everything looks great. We are off tomorrow from tests and surgeries. Friday we will have the bone marrow pathology report back. We are pretty sure that there will be cancer in it, which won't be a surprise to us and just another confirmation of this diagnosis. We did find out that there are more cancerous legions on Lukas' rib bones, hip bones and leg bones. Dr. Eams (one of our Oncologists) said that it didn't matter if there was one bone or 20 bones with cancer. Now we just have to wait a week to 14 days for the other pathology reports to come back on the tumor biopsy. That will tell us how aggressive this cancer is and the doctors are pretty certain that it is the most aggressive. Friday we will start Chemotherapy and it will be very aggressive. It will most likely be 72 hours of straight infusion with Chemo. After that we will be here as long as it takes to monitor his blood count.
We have also moved to the "Master Suite" as we call it. Room 3111. It is at least twice as big as our other room, so Theron can come up and stay and also for visitors.
I do ask that if you want to come up and visit, please come up tomorrow (Thanksgiving) before 1:30pm or after 4pm. I don't want visitors Friday. We need to get the Chemo going and get settled into the treatments. I don't know if I even want visitors for the whole time he's on it, so if you feel like you really want to come up, please call us and let us know when and we'll go from there.
As far as ways to help... I still think we are doing fine. This is going to be a several month long treatment plan and will be very stressful and very intensive and we'll definitely need meals and rides and babysitters and anything else you can think of, just not right now. I promise to ask for all the help I can get as we get more into this.
I am more grateful than I will ever be able to express for your prayers alone! I can't even fathom where we'd be right now if we didn't have all the prayers, and then there are the visitors and calls and flowers and plants (which we can't have on this floor)... I just have no words to thank you for all of it. It means more than I will ever be able to express.
I love all of you and a simple "thank you" seems so trite, but it's all I have right now. So, Thank You!
Love, us
MacDonnell Crew
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