Last day of Radiation!

This has been a LONG and horribly crappy week for Lukas and the rest of us. The steroids have really messed him up this last week and made him irritable, miserable, restless and have made his poor little tummy really upset and gassy. He sleeps for a few hours after radiation everyday and then doesn't sleep very well at night. But the good news (I guess you can call it that) is that Today is our last day of radiation. Here is our schedule for the week. Monday-register to Radiology at 7am; go up and get sedated and start radiation; wake up and get back down to Radiology by 9am to start the 2 hours of drinking the contrast fluid; 11am start NPO (nothing to eat or drink) for 2 hours before more sedation; 1pm get sedated and start CT scans and Bone Scans; go to recovery to wake up; wait for doctor to get results and then go over results....LONG DAY #1!!Tuesday- 8:30am Clinic (long day in itself!)Wednesday-12:30pm be at Radiology to get injected with radioactive contrastThursday-not sure what time yet, but get registered at Radiology; get sedated; start MRI and MIBG scans; go to recovery; wait for doctor to get results and then go over results.Somewhere in between we are supposed to be meeting with Dr. Hogan, the Neuro-Opthamologist and Dr. Malik, the Neurologist. Haven't been able to get the appoitments set up yet... That's a long and frustrating story for another time...That's the scoop so far. When we know about the scan results and when we FINALLY get appointments with those two specialists, we'll let you know more.