Ok, lots of info and lots of new dates to tell you about...
Clinic went well today. Lukas counts were high enough that he didn't need a transfusion today. He isn't eating or drinking much of anything so they accessed his port and home health will be coming out tonight to start giving him IV fluids at night. Don't know for how long. His nose is also bleeding a lot but since his platelets are up, our story is that the tumor is dying and draining out! Dr. Howery liked that story.
Thursday we go in for outpatient surgery to have Lukas apheresis line put in (another sort of central line with two access points) for his stem cell harvest-it will be removed later on. Don't know what time his surgery will be, but we will have to be there at least 2 hours earlier so they can run labs and do a platelets transfusion (doc thinks they will be low enough by then to need it) before the surgery... probably a good idea anyway to make sure he clots well during the surgery too.
Friday-Wednesday 7:45am clinic visits for labs. They will be checking his blood counts and also his stem cell counts. They have to harvest his stem cells at just the right time so they will be monitoring him everyday until he's ready. His white counts need to be over 1000 and his stem cells have to be over 10 before they start the harvest.
He will have the Peripheral Stem Cell harvest (taking the stem cells from his blood). It could take anywhere from 1-3 days to collect enough. That will be inpatient. You can search www.cancer.gov to find a slide show of how it works.
We will still try and stay on course for round 5 of chemo to start on the 10th of March. That all depends on when they harvest his stem cells. They want him to have a couple days off in between. We are going to stick with the High Risk protocol since that seems to give Lukas the best results. That can change at anytime though, so we have to stay flexible (which has become my middle name, among others...)
Friday, March 14th (don't know what time yet) we will go to the Cooks Radiology office in Hurst for another MRI with sedation.
That is all I have scheduled on our plate for now.
Clinic went well today. Lukas counts were high enough that he didn't need a transfusion today. He isn't eating or drinking much of anything so they accessed his port and home health will be coming out tonight to start giving him IV fluids at night. Don't know for how long. His nose is also bleeding a lot but since his platelets are up, our story is that the tumor is dying and draining out! Dr. Howery liked that story.
Thursday we go in for outpatient surgery to have Lukas apheresis line put in (another sort of central line with two access points) for his stem cell harvest-it will be removed later on. Don't know what time his surgery will be, but we will have to be there at least 2 hours earlier so they can run labs and do a platelets transfusion (doc thinks they will be low enough by then to need it) before the surgery... probably a good idea anyway to make sure he clots well during the surgery too.
Friday-Wednesday 7:45am clinic visits for labs. They will be checking his blood counts and also his stem cell counts. They have to harvest his stem cells at just the right time so they will be monitoring him everyday until he's ready. His white counts need to be over 1000 and his stem cells have to be over 10 before they start the harvest.
He will have the Peripheral Stem Cell harvest (taking the stem cells from his blood). It could take anywhere from 1-3 days to collect enough. That will be inpatient. You can search www.cancer.gov to find a slide show of how it works.
We will still try and stay on course for round 5 of chemo to start on the 10th of March. That all depends on when they harvest his stem cells. They want him to have a couple days off in between. We are going to stick with the High Risk protocol since that seems to give Lukas the best results. That can change at anytime though, so we have to stay flexible (which has become my middle name, among others...)
Friday, March 14th (don't know what time yet) we will go to the Cooks Radiology office in Hurst for another MRI with sedation.
That is all I have scheduled on our plate for now.
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