This is the newest suckiest news we have had in a while! I guess better blind and alive though right??
So the optometrist appointment today sucked. Lukas now has visible damage to his optic nerves. Dr. Hunt said that his case is completely unique so he doesn't know how to proceed. Lukas eyes should be getting better with chemo and they are getting worse. One of Dr. Hunt's good friends is a Neuro-Opthamologist so he is going to call him and see what he thinks we should do next. We are probably going to end up doing scans (head) right away so he can see what is going on up there and so he can figure out what to do next. We could possibly try steroids to reverse the damage, but in other cases where there was nerve damage it only worked about half the time so it's a toss up whether or not to try it. Dr. Hunt said that he has already read everything out there about Neuroblastoma and eye problems and Lukas hasn't presented with anything like the documented cases so he's going to get some advice from his friend and then talk to our Oncologist team and see what to do next. He also started talking long term. He is going to refer us to Early Childhood Intervention to come and assess Lukas development so far and then they'll watch him to make sure he continues to develop as normal as possible, and teach us how to help him. When he gets ready for school they will help him learn to use aides.
Sucks. :(
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