Radiation Update!

Linda-one of the Transport Nurses that takes us to Harris for radiation (there is a sky bridge so we just walk over)

Lukas being sedated and one of the radiation machines, this one was him going for the radiation scans before we started treatment.

Okay I'm a little slow at posting updates sometime, My apologies! Heather keeps telling me I have nothing else to do so I need to get on it. Anyway, so here is an update. Lukas started radiation last Wednesday. Heather was a bit nervous about it, well alot. So when Kurt got home from work that day they took off to the temple, did a lot of praying, and she feels alot better about it. So Lukas has been doing okay with it all, he was really tired for the first few days, all he did was sleep all day long. not even joking. so anyway, he has the rest of this week and then all of next week. Then they have scheduled more scans after radiation is all complete. Here it is all in Heathers words.........

Ok, we have rescheduled our 3 days of scans from next Monday 4th-Wed 6th to Feb 11th for the CT Scans and Bone Scan and then Feb 13th for radioactive contrast for the Feb 14th MIBG and MRI. Got all that? Confusing, I know. The doctors didn't want to do scans before we were done with radiation, one-because he would have to be sedated twice in one day for each set of scans and two-because if we weren't done with radiation, we wouldn't really know fully what the tumors reaction to the treatments was. We will also be meeting with Neurology again to assess Lukas case because he has the "dancing eyes"-pretty much it looks like his eyes are having seizures. Dr. Hunt (opthamologist) said it could be a little bit of opsoclonus-myoclonus ataxia but that means "dancing eyes, dancing feet". Dr. Grainger (oncologist) said that you don't have one without the other and his feet don't flail around when his eyes are. We will also be meeting with the only and very well respected Neuro-Opthamologist in the DFW area (Dr. Nick Hogan). There is so much going on with the tumor in Lukas head and it's causing such weird side effects that our doctors haven't seen before that they want everyone to look and come up with a solution or answers, but hopefully both. Tomorrow we will be doing Xrays again before radiation which is normal, they do them every 5 days, but that will only add on a couple of extra minutes.

Clinic yesterday went fine, counts are good. Lukas is on Tylenol/Codine more now because the radiation is wearing him out and he just can't get comfortable or deal with the aches and pains of all this. His appetite is not so good right now, some things he eats one day he can't stand the next so he gets Pediasure on days that he won't really eat anything. The docs said they don't care where his calories come from right now as long as he's getting them. That's about it for now, when we get scans we'll update you on those.