Conquering Neuroblastoma

“Faith in something greater than ourselves enables us to do what we have said we'll do, to press forward when we are tired or hurt or afraid, to keep going when the challenge seems overwhelming and the course is entirely uncertain.”
President Gordon B. Hinckley

Monday, December 17, 2007

2nd Round...

Well, Lukas had his second round of chemo last Thursday (12/13/07). He had 3 different drugs this time, but only had 2.5 hours of them instead of 72 hours so that was VERY nice!!! We just had a short stay at the hospital (we got home at 145am Friday morning-really short stay..) and then got to go home right away. As long as he does fine this round, we are expecting to be able to do chemo in the clinic from here on out. We will now be doing clinics once a week instead of 2 times, so our next visit is this Thursday at 1:45pm. We go up to have blood drawn to check his counts, they should be quite low which is to be expected, a quick physical and then a blood transfusion if needed. This will only be our 2nd clinical so I'm not sure how it will all work or how long we'll be there. Our first clinical was just labs and physical to get us admitted for his chemo. We also met with the opthamologist Thursday. He dilated Lukas' eyes and didn't find any damage or anything different from his visits in the hospital which is good. He can't really say if this will be a permanent thing or will go away as the tumor shrinks because he just doesn't know.

We got to be home for Lukas' 1st birthday. We ate at Spring Creek in Mansfield and had a nice little get together. Chelsea put some pics up on the blog. Then we went back to Debbie's house so Santa could make a surprise visit to the kids since Luke can't really get out to see him. It was great! Those pics are up too, by the way.

His hair is now thinning out and he has some bald spots now, his eye lashes have started thinning out too. He hasn't lost weight that we know of and he seems to have his appetite still. He is hitting what the docs call his "nater" now. It starts about 7 days after his chemo, that's when his counts drop to about nothing. The time frame is Chemo-7 days later counts drop-2 weeks later counts back to normal and next round of Chemo. He has thrown up a couple of times but we have his Zofran to help with the nausea. He is loosing his energy and is getting more fussy now too, but he does still play as much as he can.

Our next round of chemo should start January 4th so that's our update for now!

MacDonnell Crew
www.lukasmac.blogspot.com
www.caringbridge.org/visit/lukasmacdonnell

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