Conquering Neuroblastoma

“Faith in something greater than ourselves enables us to do what we have said we'll do, to press forward when we are tired or hurt or afraid, to keep going when the challenge seems overwhelming and the course is entirely uncertain.”
President Gordon B. Hinckley

Monday, December 3, 2007

For Your Pleasure!

Lukas wasn't having a very good day today. He has been in a lot of pain the last couple of days. They were getting ready to send them home, but he just cant seem to make it without the morphine. The doctors were trying to wean him onto Tylenol-codine, but that doesn't seem to help him. Lukas has also gotten what they call Mucusitus. I'm not sure how to spell it. They say its common when you are on Chemo. He just has a lot of mucus coming out of his mouth, and they sometimes get little sores in there too. Lukas doesn't have any of those as of yet. So he is still trying to just push through it, but its hard on the little guy.
Today I was able to play with Lukas a little. He is so sweet. The poor baby cant see, and he doesn't feel good at all, yet he just wants to be normal. These were taken a little bit after the morphine kicked in, so he was able to play for a little while.


This picture, I was holding him and Kurt was playing with him and he was smiling. Its been so long since he has really smiled a lot, so it was so sweet and wonderful to see.



I always forget that you cant rotate a video, so sorry you will just have to tilt your head or something, but its worth watching. Its not so often that he is up and playing and talking so you just have to take what you can get. He was so cute, I was having so much fun playing with him. Hes a doll!!!!!!!

3 comments:

Anonymous said...

Thanks Chelsea for taking the time to keep everyone updated on Lukas. ALso for the pictures, and the audio was great. Good job.

Love,
Grandma

Anonymous said...

yes he is!!! he is a tuff little guy!

Terri said...

Yes Chelsea Thank you so very much. This blog is the best. Lukus is such a cutie. The video was a wonderful idea. It is nice to hear him and see him happy.

We love you all,
Dad & Terri