Conquering Neuroblastoma

“Faith in something greater than ourselves enables us to do what we have said we'll do, to press forward when we are tired or hurt or afraid, to keep going when the challenge seems overwhelming and the course is entirely uncertain.”
President Gordon B. Hinckley

Sunday, December 9, 2007

Home at Last!

WE ARE HOME!!!!! Lukas got discharged from the hospital today around 3ish after he finished up his antibiotic today. It felt SOOO good to get out of there after 3 weeks!!! We now have another few changes to our game plan as well.

We are going to be eating dinner at 6:30pm on Tuesday at the Spring Creek in Mansfield (off 287) If you would like to come out and join us for Lukas' birthday dinner, we'd love to see you! We'll be there from 6:30 till 8pm. His counts are back to normal, but if you aren't felling completely well know we love you and we'll see you when you are feeling better. We'll still be around!

Chemo: We are now going to start his next round of chemo on his 21 day mark which will be this Thursday. We are going to go in for his optometrist appointment that morning and then be admitted to the hospital for the night. We are going to start his chemo Thursday and then stay through Friday to see how he reacts to this new dosage. If all goes well, we will be able to go home Friday and then only have to go into the clinic for the rest of his rounds of chemo. We are hoping this is the case!

I guess we shaved his hair for nothing! It hasn't started falling out. His eyelashes are starting to fall out though which has been really bothering him. He has been rubbing them so much that he has bruised his left eye. The doctors took him off his fluids last night and didn't give him any nutrition so when he woke up this morning he was hungry! He ate a ton of Cheerios and Teddy Grams. He is drinking a little, but we'll work on that. He hasn't had to have too many doses of pain meds either which is good to see. So all in all, I think he's been doing really well. Much better than Kurt or I expected.

We appreciate all of your prayers and gifts and support. It has made a world of difference for us and I'm sure it will continue to be a great help. We really know how much we are loved and cared for and are so grateful for that!

Love, us
MacDonnell Crew

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