It's been a really good last couple of days! Lukas has been feeling up to playing and laughing! He hasn't had any morphine since Wednesday morning and has only had a half a dose of Tylenol/Codine (because he spit most of it out!) this morning. He just had some regular Tylenol and that seems to be doing the job.
Lukas has been on nutrition (through his IV) the last couple of nights since he hasn't really been eating. Dr. Eames is hoping that once he is off fluids and nutrition he'll have more of an appetite since he won't feel full all the time. I hope so too. It's hard seeing him not eat or drink much.
So here is the latest news..... We are going to do 8 rounds of chemo (so 7 left to go). Our doctors feel very uncomfortable going into resect the tumor in Lukas head because of where it's located so they are hoping to shrink it away or at least enough that it's a LOT easier to do surgery on. That's perfectly fine with us. The tumor is in the bone, has a lot of blood supply and is surrounded by soft tissue and the adenoids. I am not a doctor, but that sounds pretty dangerous to me!
Lukas counts are back up to normal so we are still on track for our next round of chemo to start on the 18th. Because we are doing a different set of drugs for this round, we are going to try and do it in clinic so we can go home after an 8 hour hospital day. I think we'll have two of these in a row and then just clinic visits until the 3rd round. The doctors want to make sure he is really hydrated so they'll be pushing fluids while he is doing chemo. As long as he reacts fine, then we won't have to stay overnight.
The docs are all hoping that once the tumor shrinks he will get his vision back. The neurologist and opthamologist both say that things look good from their prospective so they are thinking it is just the tumor that is causing problems. Dr. Eams hasn't had any of her patients have this kind of problem, so she said we'll just wait and see how things happen and hope that it is the tumor causing problems as the other doctors think.
We'll have more CT's and MIBG's in between the chemo to see how the cancer is reacting to the treatment, but I don't know if those are scheduled yet.
I feel like I am forgetting something so if you have questions, just ask!
MacDonnell Crew
Lukas has been on nutrition (through his IV) the last couple of nights since he hasn't really been eating. Dr. Eames is hoping that once he is off fluids and nutrition he'll have more of an appetite since he won't feel full all the time. I hope so too. It's hard seeing him not eat or drink much.
So here is the latest news..... We are going to do 8 rounds of chemo (so 7 left to go). Our doctors feel very uncomfortable going into resect the tumor in Lukas head because of where it's located so they are hoping to shrink it away or at least enough that it's a LOT easier to do surgery on. That's perfectly fine with us. The tumor is in the bone, has a lot of blood supply and is surrounded by soft tissue and the adenoids. I am not a doctor, but that sounds pretty dangerous to me!
Lukas counts are back up to normal so we are still on track for our next round of chemo to start on the 18th. Because we are doing a different set of drugs for this round, we are going to try and do it in clinic so we can go home after an 8 hour hospital day. I think we'll have two of these in a row and then just clinic visits until the 3rd round. The doctors want to make sure he is really hydrated so they'll be pushing fluids while he is doing chemo. As long as he reacts fine, then we won't have to stay overnight.
The docs are all hoping that once the tumor shrinks he will get his vision back. The neurologist and opthamologist both say that things look good from their prospective so they are thinking it is just the tumor that is causing problems. Dr. Eams hasn't had any of her patients have this kind of problem, so she said we'll just wait and see how things happen and hope that it is the tumor causing problems as the other doctors think.
We'll have more CT's and MIBG's in between the chemo to see how the cancer is reacting to the treatment, but I don't know if those are scheduled yet.
I feel like I am forgetting something so if you have questions, just ask!
MacDonnell Crew
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